Most parents worry about scraped knees, tumbles on the playground or gym class injuries. But for the Raia and Tisdale families, their everyday fears are life-threatening: a seizure that can strike ...

Dravet syndrome affects around 1 in 15,700 children, and most cases are caused by mutations in the SCN1A gene. This gene ...

Dravet syndrome is a rare, catastrophic, lifelong form of epilepsy that begins in a baby’s first year of life with frequent and/or prolonged seizures. About 1 in 16,000 people are affected by Dravet ...

The Dravet syndrome community is invited to share videos highlighting the sounds of their everyday life with fewer seizures on FINTEPLA ® (fenfluramine). The project will display a gallery of videos ...

Please provide your email address to receive an email when new articles are posted on . LOS ANGELES — Zorevunersen led to 75% to 80% seizure reduction in patients with Dravet syndrome, according to ...

Adam Feuerstein is a senior writer and biotech columnist, reporting on the crossroads of drug development, business, Wall Street, and biotechnology. He is also a co-host of the weekly biotech podcast ...

Adam Feuerstein is a senior writer and biotech columnist, reporting on the crossroads of drug development, business, Wall Street, and biotechnology. He is also a co-host of the weekly biotech podcast ...

Biogen has refueled its R&D engine, paying Stoke Therapeutics $165 million upfront for ex-U.S. rights to a phase 3-ready molecule that could become the first disease-modifying treatment for Dravet ...

Encoded Therapeutics is shrinking its headcount by 29% as the gene therapy biotech draws resources away from its early-stage R&D toward its Dravet syndrome program. The asset in question, dubbed ...

LACKAWANNA COUNTY, Pa. — Seven-year-old Cael Hill of Roaring Brook just started kindergarten this year. "He is very into dinosaurs and Spider-Man. Your typical little boy in terms of his interests, ...