"I dropped onto the sidewalk, my arms wrapped around my bent knees. 'Take him inside, don’t let him see me,' I blurted out.” ...

STOK's zorevunersen shows strong efficacy in reducing seizures but has safety concerns, particularly elevated CSF protein levels, needing further monitoring. Dravet Syndrome market potential is ...

PERKASIE, Pa. (CBS) -- This holiday season is extra special for a Bucks County family learning to live with a rare disease. New research is allowing the family to enjoy the holiday with their little ...

Most parents worry about scraped knees, tumbles on the playground or gym class injuries. But for the Raia and Tisdale families, their everyday fears are life-threatening: a seizure that can strike ...

The Dravet syndrome community is invited to share videos highlighting the sounds of their everyday life with fewer seizures on FINTEPLA ® (fenfluramine). The project will display a gallery of videos ...

Lundbeck says Longboard Pharmaceuticals’ drug, bexicaserin, has potential applications in a range of rare epilepsies. Last month, the biotech began a Phase 3 clinical trial testing the drug in Dravet ...

Kinney Drugs opens appointments for second COVID-19 vaccine dose for eligible patients Kinney Drugs is opening appointments and walk-ins for eligible people to get their second dose of the COVID-19 ...

It’s a dilemma that keeps Smyrna resident Shannon Cloud up at night: Who will care for her adult daughter when she and her husband die? Though Alaina Cloud just turned 19, she requires ...

Biogen (BIIB) and Stoke Therapeutics just published final results from the two-year BUTTERFLY study. The data highlights that neurodevelopment in Dravet syndrome patients plateaus at around age two, ...