"I dropped onto the sidewalk, my arms wrapped around my bent knees. 'Take him inside, don’t let him see me,' I blurted out.” ...

STOK's zorevunersen shows strong efficacy in reducing seizures but has safety concerns, particularly elevated CSF protein levels, needing further monitoring. Dravet Syndrome market potential is ...

Kinney Drugs opens appointments for second COVID-19 vaccine dose for eligible patients Kinney Drugs is opening appointments and walk-ins for eligible people to get their second dose of the COVID-19 ...

Bill Mulholland displays copies of recently completed works, including a poetry anthology and a book chronicling the life of his special needs granddaughter. “The absence of your laughter is not a ...

From the column: "The policy has long enjoyed bipartisan support: It channels private dollars toward children’s hardest ...

The Dravet syndrome community is invited to share videos highlighting the sounds of their everyday life with fewer seizures on FINTEPLA ® (fenfluramine). The project will display a gallery of videos ...

Most parents worry about scraped knees, tumbles on the playground or gym class injuries. But for the Raia and Tisdale families, their everyday fears are life-threatening: a seizure that can strike ...

PERKASIE, Pa. (CBS) -- This holiday season is extra special for a Bucks County family learning to live with a rare disease. New research is allowing the family to enjoy the holiday with their little ...

Staff at Tiddlers Nursery in Coventry have been praised for the care and support they have provided to a two-year-old boy ...

Lundbeck says Longboard Pharmaceuticals’ drug, bexicaserin, has potential applications in a range of rare epilepsies. Last month, the biotech began a Phase 3 clinical trial testing the drug in Dravet ...

It’s a dilemma that keeps Smyrna resident Shannon Cloud up at night: Who will care for her adult daughter when she and her husband die? Though Alaina Cloud just turned 19, she requires ...

ST. LOUIS — The 5th annual Dance for Dravet took place on Friday, October 6th at Third Degree Glass Factory in St Louis, Missouri. Started in 2019 by the Brennan and Odlaug families, the event was ...